An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living?
Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.
Despite his faith that modern medicine would not fail him, August was born with a severe traumatic brain injury as a likely result of medical error and lived as a spastic quadriplegic who was cortically blind, profoundly cognitively impaired, and nonverbal. While Gabbard tried to uncover what went wrong during the birth and adjusted to his new role raising a child with multiple disabilities, he began to rethink his commitment to Enlightenment thinkers—who would have concluded that his son was doomed to a life of suffering. But August was a happy child who brought joy to just about everyone he met in his 14 years of life—and opened up Gabbard’s capacity to love. Ultimately, he comes to understand that his son is undeniably a person deserving of life.
A Life Beyond Reason will challenge readers to reexamine their beliefs about who is deserving of humanity.
“This is both a memoir of a child’s short life and a father’s journey from an academic who thought that love was a weakness to a thoughtful, questioning adult who values the capacity to give and receive love. Parents and caregivers will find plenty of inspiration in these moving, empathetic pages.”
—Kirkus Reviews
“A timely exploration of medical error, a moving disability memoir, and an elegy for the blithe spirit of a much-loved child.”
—Sandra M. Gilbert, coauthor of The Madwoman in the Attic
“This gorgeously eloquent memoir is . . . in the top most moving, troubling, and ultimately rewarding reading experiences I’ve ever had.”
—Elizabeth McKenzie, author of The Portable Veblen
“Gabbard writes with wit and humility about how caring for August prompted him to reexamine his deepest assumptions about the value and purpose of human life. This book should be required reading for parents, caregivers, teachers, and doctors.”
—Rachel Adams, author of Raising Henry
“A Life Beyond Reason is an extraordinary book, telling a story that needs to be told—and heard. It is a story of extreme caregiving . . . . It is also a story of enduring love, and the way that loving someone with a disability can change your world . . . . This bracingly unsentimental book is moving, illuminating, and deeply rewarding.”
—Michael Bérubé, author of Life As Jaime Knows It
“Stunning.”
—Terry Castle, author of The Literature of Lesbianism
“A must read.”
—Lennard Davis, author of Enabling Acts
“If you have ever questioned the very foundation of your beliefs—you will want to read this book.”
—Andrea Lunsford, author of The Everyday Writer
“Invites you to bask in its heartening warmth.”
—Ralph James Savarese, author of Reasonable People
“Candid and unexpected.”
—Mike Northen, editor of Wordgathering
“Gabbard’s story of his son August’s life will leave you thinking about . . . the very definition of being alive and human.”
—Mark Woods, author of Lassoing the Sun
“Loving and unsentimental . . . Chris Gabbard deftly explores the fraught, overlapping territories of caregiving, parenting, disability, and medicine.”
—George Estreich, author of The Shape of the Eye
- “9/25/19: Impeachment; Medicaid Waivers; Regenerative Agriculture; Mission House; Home & Patio Show,” WJCT/First Coast Connect (Jacksonville NPR), interview
- “A Life Beyond Reason - Chris Gabbard,” Completely Booked (Jacksonville Public Library podcast), interview
- “The Grace of the Sibling: A Conversation with Clio Chazen-Gabbard,” Who Lives Like This?!, podcast interview with author’s daughter
- “Author of A Life Beyond Reason: A Father’s Memoir discusses powerful book (FCL July 10th),” NBC-12/First Coast Living (Jacksonville, FL), live interview
- “The Life Worth Living with Chris Gabbard,” Who Lives Like This?!, podcast interview and excerpt
- “Bookmarks: Signings, storytimes, new book releases,” Florida Times-Union/Jacksonville.com, announcement of author’s book signing event
- “San Marco author learns about life through care of disabled son,” • The Resident Community News (Jacksonville), Q&A
- “Families with special-needs children left to fend for themselves,” Orlando Sentinel, op-ed
- “Chris Gabbard discusses his new memoir, A Life Beyond Reason,” On the Blink (blog), Q&A
- “Recommended Reading: A Life Beyond Reason,” The Grief Diaries, write-up
- “6/12/2019: Pulse Shooting At 3 Years; Blood Donation; ‘A Life Beyond Reason’; Going Green,” WJCT/First Coast Connect, interview
- “Chris Gabbard’s Playlist for His Memoir A Life Beyond Reason,” Largehearted Boy, playlist with author notes
- “Father’s Day, every day, with my disabled son,” Salon, excerpt
- “‘A Life Beyond Reason:’ UNF prof tells story of son’s short life,” Florida Times-Union/Jacksonville.com, interview